Logan and Grandma Sankey
Hi, everyone. Here's the latest on Logan. The second pathology report from the biopsy revealed a fungal component mixed with the what-had-been infectious material behind and beside his eye. Knowing this and seeing as how the week of steroids he just took didn't help the proptosis/eye bulging, as of today the Infectious Disease doctor has decided to "shift gears" and target the fungus that he apparently has in his ethmoid sinus extending into the orbit of the eye. She has put him on VERY expensive anti-fungal therapy for an indefinite amount of time. He starts that new medicine tomorrow; he is still taking the Vancomycin by PICC line at least until the middle of February. He is to be tested for tuberculosis, have a chest x-ray taken, and more blood drawn to pinpoint the kind of fungus present - all in the next few days.
The good news is that fungus is treatable, even though it is "slow to grow, slow to go". We do know that he has chronic sinusitis, nasal polyps - basically what the ENT called sinus disease. It could be the case that all of this caused the fungus to grow/develop even over a long period of time - we don't know how long.
The proptosis is beginning to cause Logan some pain - more than before. We are really in hopes that treating the fungus will allow the inflammation to recede, thus allowing the eye to fall back into its normal orbit.
But due to how the situation seems to be stabilizing at least for a couple weeks, Marc is planning to keep his commitment to Sea Breeze Camp 2008 in Hobe Sound, Florida as one of the main evangelists and he will be flying out a week from today. Jordan and Cameron are SO excited, because they get to go with him! Logan and I will stay here and "get better" - we hope and pray. We'll definitely be logging on to as many services as we possibly can.
Logan turns 9 a week from tomorrow - he's coming up with his plan to celebrate! Just so it includes being tied to an IV pole every few hours....
Thanks for your prayers for all of us.
Melodie